I have attempted to write a synopsis of my daughter’s
journey through DPD Deficiency with the Folfox that had 5FU in the cocktail.
She had horrible black blisters in her mouth that caused her excruciating pain.
When we returned to have the pump disconnected; Cherri thought she did something to the pump and I assured her she didn’t touch the pump.
that set up her pump; came flying over to us with apologies stating he programmed the pump wrong.
Cherri’s white count never was any higher than .01.
I called a priest to come to hospital to pray and when he saw her physical appearance he suggested he give my daughter the last sacrament.